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Showing posts with label craniosynostosis. Show all posts
Showing posts with label craniosynostosis. Show all posts

thank you

the kindness you have all shown us has been remarkable. I wish I could reach out and hug you all for making us feel so supported..we have read each and every one of your comments left here and on my Instagram account and you have left us speechless! Thank you from the bottom of my heart.

Today we leave for Calgary. It's the final stop before the big day tomorrow and I am a mixed bag of emotions. Hudson is full of giggles and smiles these days and I hope we won't go too long before seeing his sweet personality again. It breaks my heart just thinking about it...

Today is pre-op day. He'll have bloodwork done so they can test his blood type and make sure they have a supply on hand in surgery for if/when they need to do a transfusion. He will also get a laser head scan today to show things such as head circumference and "before" pictures that we can compare to the "after" ones he'll have taken 2-3 weeks post op. 
We'll also find out his surgery time for tomorrow, keeping our fingers crossed it's bright and early so that:
A) he won't have to go too long after waking without eating for his pre-op fasting; and
B) we can just get it over and be done with it

So here we go. I am fearful and hopeful and everything in between...but lets do this!

Craniosynostosis...

When I was expecting Hudson, I had the usual fears and worries about parenthood. I never, ever expected our journey in parenthood to begin the way it did and life in 2014 surely threw us some major curveballs. But you know what? We're still here. We're smiling, we're together and we're stronger than ever. Hudson has filled this void in our lives that we didn't even realize was there. He's our breath of fresh air and his personality and smile make my day..every. single. day

But a curveball that was thrown at us at the end of November was that Hudson was diagnosed with an early fusion of the metopic suture. What that means is the frontal plates of his skull fused earlier than they should and his brain can no longer grow forward the way it needs to. It won't inhibit his brains growth but it could lead to a head shape deformity, pressure, migraines, eye problems..the list went on.

We were told we needed to make the decision on his surgery within a week as they like to do them before babies are a year old (bones only get harder as we grow) and Hudson turns one this Sunday (Jan 11th). The surgery would have Hudson put under for 3 hours. An incision would be made in his hair line from one ear to the other and it would involve the removal of his skull so they can break the fuse, reshape it and finally, replace it. He may require multiple blood transfusions and would be so swollen he may not be able to see for a couple of days.

It was a heartbreaking & shocking appointment. We went in to check on his lip (which was fine!) and came out with a major cranial surgery looming over our heads. That silent, tearful walk to the truck that day will forever be etched on my heart.

Since then we have done our research and asked multiple doctors and family members their opinion. Our confidence has grown in our decision to go ahead with the surgery and I am hopeful that everything will be okay. But I would definitely be lying if I told you I wasn't scared. So many fears have crept up on me. My baby and cranial surgery, how did this happen?

So here we..his surgery is happening Wednesday and I am reaching out and asking you keep my little boy in your hearts this week. We know what to expect from our research and we know it's going to be hard. But we also know that Hudson is strong, so so SO strong and he is surrounded by a huge support group to help pull him through. The light for me in this dark time is knowing he won't remember any of it. Not the needles or the pain or the days of being so swollen he won't be able to see. And I am so thankful for that

And on top of his strength? I know that babies are resilient. He will (hopefully) be back to his smiley, giggly self within a week and that lightens the nerves we have right now. Hudson will be in the PICU for 3-5 days and then we'll be released on Tylenol (wow). It's amazing and it's terrifying what they can do these days!

So my friends? Please.. Please pray for Hudson as we embark this week on the scariest thing we have encountered in our first year as parents. Keep Hudson in your heart and your thoughts this week as he goes under and recovers..I can't tell you enough how much we'd appreciate it.




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